Monday, February 8, 2010

My Stack.... That Seems to be Growing By the Minute.

This is what I think about 24 hours a day 7 days a week.....This stack of papers have been growing since Sept. 22, 2008, when EI services began for Big Al. Now the stack has Little Al papers mixed. These papers have allow my children to come in contact with beautiful service providers. Sometimes I wish they didn't have to see them. I wish my children led "normal" lives. I find myself saying to everyone "It's ok."

This stack of paper has educated me. What normal person knows what Pervasive Developmental Delay is? What normal person knows what a sensory disorders? I know what these things are and I don't have a degree in disorders.

Sensory disorders may influence one, some, or all of the physical senses. There are 7 categories encompassing our sensory functions. These groups are: Tactile (touch), Auditory (hearing), Visual (sight), Taste, Olfactory (smell), Vestibular (movement and gravity), and Proprioceptive (body awareness, muscles, and joints). Most people experiencing sensory disorders are either hypersensitive (over stimulated) or hypo sensitive (under stimulated). One defective sense influences several different bodily functions. If one or more senses are disturbed, the sensory messages sent to the brain are incorrect. These messages become disarranged, causing the individual afflicted to perceive their environment in a different way. Reality is misinterpreted, leading to faulty judgments and replies. (

Little Al is struggling with a sensory disorder. She is 16.5 months old and can't not walk, communicate her needs or wants and can't say Mama. .

Big Al is struggling with a sensory disorder. He is 40.5 months old and isn't phased by pain, bleeding or extremely cold temps.

Understanding why this happen to my youngest will take a life time.

Getting them the help they need is my focus.

I am feeling overwhelmed right now.

Saturday, February 6, 2010

So Many Abbreviations, It Can Make Your Head Spin.

As of Febraury 1st, Little Al is enrolled in the New York State Early Intervention Program. EI is a national Early Intervention Program designed for infants and toddlers with disabilities and their families. There is a range of services that are offered in EI. Little Al is following her older brother foot steps and has begun to get SI, ST, OT and FI.

SI = Special Instruction

ST = Speech Therapy

OT = Occupational Therapy

FI = Family Instruction

EI support services are given free of charge until the age of 3. Little Al was a child of EI and has upgrade to CPSE (Committee of Pre-School Special Education). All of the EI services are home-based unless a center is requested. If Little Al's delays are caught early she can led a normal childhood. We got her evaluations done earlier then Big Al. Also, her delays are not as "hardcore" as her big brother. Big Al is currently enrolled in CPSE at Easter Seal Child Development Center.

Good news Little Al's EI SI and OT are members of Alex's EI Service Army.

It can be very overwhelming to deal with.

I have to strong to deal and organize the Fleet of Disability Services.

I can feel more grey hairs growing.